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Fragilex
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Fragilex reviews
Information about Fragilex
4,64
11 reviews
The opinions come from external websites
Last update: 11.10.2022
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https://www.google.com/maps/reviews/data=!4m8!14m7!1m6!2m5!1sChdDSUhNMG9nS0VJQ0FnSUNBb2JqNm93RRAB!2m1!1s0x0:0x4f0ae431b512854!3m1!1s2@1:CIHM0ogKEICAgICAobj6owE%7CCgwI8Oq3vQUQgP_1sQM%7C?hl=en-US
Shibin shibin
google
https://www.google.com/maps/place/?q=place_id:ChIJY2zuxuphhYARVChRG0Ou8AQ
Shibin, this review is from 3 yrs. ago, but could you help us understand your rating? [email protected]
1570117546
1
1515091752
https://www.google.com/maps/reviews/data=!4m8!14m7!1m6!2m5!1sChZDSUhNMG9nS0VJQ0FnSUNnMnNHaEd3EAE!2m1!1s0x0:0x4f0ae431b512854!3m1!1s2@1:CIHM0ogKEICAgICg2sGhGw%7CCgwIqO650gUQgKT69wE%7C?hl=en-US
Deidrea Peabody
google
https://www.google.com/maps/place/?q=place_id:ChIJY2zuxuphhYARVChRG0Ou8AQ
5
New to the group but very excited to be apart of a local group! Have heard great thing from families I support.
1515438278
https://www.google.com/maps/reviews/data=!4m8!14m7!1m6!2m5!1sChZDSUhNMG9nS0VJQ0FnSUNnZ19fT0lBEAE!2m1!1s0x0:0x4f0ae431b512854!3m1!1s2@1:CIHM0ogKEICAgICgg__OIA%7CCgwIxoHP0gUQwPeujgI%7C?hl=en-US
Barber Family
google
https://www.google.com/maps/place/?q=place_id:ChIJY2zuxuphhYARVChRG0Ou8AQ
5
We received our diagnosis in 2010 and at that time we were completely unaware of what Fragile X was or how we could help two of our children that have the full mutation. A couple clicks later and I found the National Fragile X Foundation and I am so glad I did. We have received non-stop support and encouragement along with information on valuable resources that we have been able to utilize for our children. In 2014 we took on a more active role and are helping to raise awareness in our own community and reaching out to our community members who have received this diagnosis. Without the NFXF we would be lost on this journey, but thanks to their support we have a plan and a goal in sight.
1515086676
https://www.google.com/maps/reviews/data=!4m8!14m7!1m6!2m5!1sChdDSUhNMG9nS0VJQ0FnSUN3X0xpT3hBRRAB!2m1!1s0x0:0x4f0ae431b512854!3m1!1s2@1:CIHM0ogKEICAgICw_LiOxAE%7CCgwI1Ma50gUQwMmnzQI%7C?hl=en-US
Denise Devine
google
https://www.google.com/maps/place/?q=place_id:ChIJY2zuxuphhYARVChRG0Ou8AQ
5
The Foundation has supported our family for over 20 years. We do all we can to return the support!
1514316085
https://www.google.com/maps/reviews/data=!4m8!14m7!1m6!2m5!1sChdDSUhNMG9nS0VJQ0FnSUNRckxEWW1BRRAB!2m1!1s0x0:0x4f0ae431b512854!3m1!1s2@1:CIHM0ogKEICAgICQrLDYmAE%7CCgwItcKK0gUQwNiapgI%7C?hl=en-US
Holly Roos
google
https://www.google.com/maps/place/?q=place_id:ChIJY2zuxuphhYARVChRG0Ou8AQ
5
Without the National Fragile X Foundation, I can't imagine where we would be today. I've become connected with so many families who understand and live lives like ours. From day to day tips, to research participation to advocacy and awareness, the National Fragile X Foundation truly does it all and is always here for everyone.
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